The Good Family

A family very close to my heart is in the current motions of embarking on a very scary, unknown journey. I was a nanny to 2 little girls YEARS ago (and by years, 5 years to be exact). One was in the first grade and the other was just born. The youngest was born with T.A.R. Syndrome. A very very rare disease. By rare, I mean 1 in a million! She has a lot of WBC issues and she can't clot her blood. Her parents were always on their toes to make sure she didn't even get a scratch! Well as you can imagine you can't keep injury away from a growing child, especially for 5 years! So what would be a minor little cut or bruise for you and I, ends up being this life-threating situation for this little girl. God has been with her since the beginning!

She fell one day and hit her eye. Rushing to the emergency room to care for her injury, they discovered a tumor in the same eye that she fell on. Gods way of letting this unknown tumor, becoming known. Doctors were able to care for this. Her eye got so swollen she couldn't even see out of it. She's a vivavious little girl. Full of life...its bursting from within her!

She loses platelet counts and gets real clumsy and loses her balance a lot. The time came for the hard news that she would need a Bone Marrow transplant. No one in her family was a match. Finally the doctors were able to find a match. She had her central line put in today. She will start chemotherapy tomorrow and she will undergo her bone marrow transplant in the next few weeks. She will lose her hair, her mouth will be filled with sores so severe she can't eat or drink, she will be very sick and at her absolute sickest around Christmas. She will be in absolute isolation until March 2011.

I can't imagine what they are going through, but as a mother, my heart breaks. I don't want to imagine my child being so sick and needing chemotherapy at such a young age and having to be isolated from everyone for MONTHS! Helpless. I feel like I can't do anything to help, but I know I can pray! I can lift her and her family up. I know the Lord will wrap them up in His arms. I pray they feel His love, warmth, peace and strength. This is a very unknown, fearful journey, but I know God will be with them every step of the way. Please keep The Good family in your prayers!!